Prompt Day 5: Here is more a composite picture. I wrote from a patients personna but then rewrote till all identifying info was removed. Almost all of my patients have some degree of vision issue, hearing problems, and trachs. Some are completely dependent to even be moved. But ALL have personality, likes, dislikes, fears and favorites. I hope I did them justice.

Occupational Therapy

Music is playing as I lay on my back and respond with my body to the
Colors and lights and sounds.
Footsteps, I feel them as much as hear them grow closer,
Even though the new hard plastic things are already shoved in my ear.
Two people, one grandma, one a stranger.
I hear those sounds again as Grandma’s voice rumbles
My name, I know my name in all its versions,
Elizabeth, Lizbeth, L’il Lizzie, Hush Lizzie, Poor baby,
But she says my favorite “Pretty Betty Butterfly”
Only Grandma calls me her “Pretty Betty Butterfly.”
I turn my head trying to catch a glimpse of the other, new voice,
it is soft and full of small sounds. It’s mostly Grandma talking.

“Cortical Blindness”
“Anoxic Brain Injury”
“Difficult delivery, lucky they both lived”
It is grandma’s voice, but those sounds make it sad.
I know the sounds but not what they mean.
I know sad,
I know happy,
I even know mad.
I know Grandma
And mother
And hungry
And full
And light and smells and warmth of arms.
I know I like Elmo, and Daniel the Tiger.
I start to chirp my tracheal Grandma song.

But now there is a new voice.
I am cautious, and close my eyes, pretend sleep.
Because I also know pain.

But there are no bright lights or biting smells
Just the press of the thing against my chest and my belly.
I am uncertain, afraid
But then there are arms holding me and the voice knows how to lean into the parts I can see.
Her hand puts my one hand on Grandma
And moves her other hand by her chin, her mouth.
Then I am sitting propped in her lap,
She takes my hand and touches Kitty,
my other hand touches my face, just below the nose
(I know nose)
and my hand moves sideways in the air,
I think she wants something from me
So I try to raise my own hand to my face.
Over and over we touch things and move our hands.

I like her smile, and her singing
And I want to tell her that
But mostly I want to close my eyes and smell her shirt
And dream.