Lady comes to the gate dressed in lavender and leather…

“The embroidery of your life holds you in and keeps you out but you survive…”

“Albatross” by Judy Collins has been a favorite of mine for half a century. If you have never really listened to it, I recommend you at least read the poetic lyrics, her voice is not everyone’s taste (definitely mine.

I have been listening to Judy a lot lately. Not by design, but happenstance. I can never make decisions these days so I push random and let the little digital hamsters in my Kindle decide my playlist. Apparently they think I need more Judy, Josh and Barbra this week. Quite OK with me. I have been painting and they are perfect background.

Musical musing asides, I actually started this blog to talk about my 2018 word. I need a little help from my friends. It’s February and I still don’t have my word for 2018.

I pick a word each year and use that word as a spring board for personal growth. I have tried on at least a dozen, none have felt right yet.

Any suggestions?

Love is but a song to sing; Fear’s the way we die

(New Blog Post: Take 30 something…)

If I give myself credit for effort and time spent, I am blogging every day. If I measure by my visible output, what you see, I am a failure.

Funny isn’t it how perception is everything and nothing.

I love words; their power and majesty, the weapon of choice for budding dictators and wise teachers; their subtle color and sound when spoken by poets and lovers.

I am afraid of saying the wrong thing, afraid of saying the right thing in the wrong way.

Sometimes the one brave thing a day I do is getting out of bed and still trying to just be.

Today, it was facing down and identifying my own emotions.

My emotions are many, tumultuous, contradictory, and sometimes even unpleasant and even then still mine. I readily admit to anxiety. However, I rarely own my anger and generally squelch my fear. I make it a general rule to do one thing a day that scares me. And I don’t understand the purpose of angry displays.

Maybe its a little late in my life to be really learning this on a ‘gut’ level, but Fear and Anger have their functions too. They tell me I am stuck in one of those tiny mazes again where I need to consider a new option. They tell me I have taken on too much, or that I might be in physical danger or maybe that I need more personal boundaries.

What they don’t mean is that I need to be less compassionate. What they don’t mean is that I need to be selfish or cruel.

Perhaps it is time to adjust my perception of myself and measure myself on intention and effort, not just visible product.

Love is the song I will always sing, because fear is what kills us, kills democracy, kills hope. Learning to still love myself as unconditionally as I love my brother, is hard, and frightening.

But as always, love will win.

It’s a lesson too late for the learning; made of sand, made of sand

Lyrics change meaning in altered circumstance. I found this song on repeat on my inner soundtrack, not in reference to a lost love, but instead to both my memories and lost life and you new friends struggling with dementia as well.

So many things still to learn, but the learning takes a drawer of spoons these days.

I haven’t stopped trying. I am taking Tae Kwon Do. I started a new support/coping skills group at the VA mental health as well as an eight week course on moving and balance from the PT department. I use my new breathing machine at night. I read, slower and with frequent need to reread. I paint. I knit. I work to write, to play my video games, follow Lego instructions.

I can no longer drive nor take the bus. I can no longer safely cook or babysit my grandkids because I cannot think quickly enough or stay focused enough to do either safely. Alone I get too easily lost or baffled. In stead of minutes or hours to make a post, knit a scarf, read a few chapters; it takes a couple days. And even then the mistakes slip in at higher rates.

It has been a year since I acknowledged something was wrong.I am still grateful. I still strive to be kind and useful. I still laugh regularly and face my challenges.

I cannot control what is happening to me, but I can continue to choose how I respond.

“Going away with no words of farewell, will there be not a trace left behind…”

Holding on to who I was, what I could do, is like a fist full of sand.

To all my friends and readers and to the self that is slipping away I sing “I could have loved you better, didn’t mean to be unkind, you know that was the last thing on my mind.”

Have I done any good in the world today…..

Recently a friend’s Facebook post asked others to examine how they think. Not what was on their mind, but how their mind presented information about their day. Some people think in pictures, some in words, some hear their own voice, some here an entire radio play with parts, some have a movie in their head; humans usually have more than one approach to information processing, but usually one predominates. Me, I have a soundtrack.

My Blog post titles are all lines from my current top 40, usually ( but not always) the first line of the #1 spin of last week. OK, really the last few hours if I blog daily, but the point is, if you are my age, and process like me, the last sentence ended in Kaycee Kayson’s voice. Why?

The things we expose ourselves to repeatedly form branches in the tree of our head where the flowers of thoughts, feelings and actions grow.

When life is hard (because it is sometimes), I become sad, grief is real and settles when least expected. Like most people my age, I grieve multiple types of loss – people who have died, faith in past paradigms and their accompanying dreams, fractured future plans, and people who are absent through choices, theirs or mine.

I also become incredibly frustrated. Sad seems to increase my craving to control the things I can’t. Things like when, how and who gets cancer; the unfair distribution of wealth in our nation; meanness, gossip and judgement about myself or others by others; how many flying food induced clothing changes I have to make in a day; that I can’t drive…. I won’t continue, I only did this free association train to demonstrate a fact I have learned.

I notice that when I focus on my frustration I slowly circle into smaller, prettier, and more selfish concerns, until the world becomes all about me and my problems. The spiral gets tighter until I am consumed by anger; impatience, and may I even add hate, with and toward things and people, grows to a destructive perfect storm.

However if I focus on my choices through kindness, gratitude, and usefulness, the things I can’t change are still there but damage is mitigated to myself and others.

Because life isn’t fair and really, really bad shit happens to really, really good people (see “unfair”) I have learned what my top 10 songs need to be when I am in the eye of a hurricane.

Today I am on my third shirt because my hand is busy marching to its own drummer today; my first friend here (closest to my age, similar health) 911’d out and probably won’t be back; I still don’t know where my bed is; most troubling someone I deeply love and their child I also think is wonderful are going through something I can neither help with or change.

So my top 10 playlist repeats in my head. #10 on the list is Ella Fitzgerald’ s version of Wonderful world. It is also the first line in yesterday’s blog. I hear the songs of my soundtrack in particular versions and voices, not necessarily the best known, and really unsure how my brain picks the performance to add to perma play.

#9, is mine and my sister’s Suzanne and Diane singing a hymn together a decade ago.

Perhaps tomorrow I will tell you another, or maybe not, all I know is I am now off to do some good in ways I still can.

P. S. Today’s post went easier than yesterday’s. I started at 7 am, finishing editing at noon. Probably still needs more editing but posting as is!

Namaste

I see trees of Green, red roses too…

Writing currently takes a level of concentration I find difficult to accept; I start to write, the thoughts in my mind seem to flow until I open WordPress and begin to type. I cannot remember how to do paragraphs on my keyboard or where to enter the title. I cannot find the songs I want to play while I blog.

Somehow my mind remembers a typewriter better these days and I look for the return bar, I hit the key that says return knowing that somehow on this program and this keyboard its more difficult than that.

And I almost put it all away again and go to bed, early as always because the evenings darken the shadows and unravel the rememberings.

I know I am the baby here in my landlocked silver aged cruise. Meals are tasty and prepared by others, no longer do I seek out a away to get what I crave, be it food or adventure, but a way to crave what I get. Activities, friendliness and food all expertly tailored to us, the target audience, the great ship of senior and assisted living sailing around the iceberg of age and illness.

I’d rather not be doing this, but at least I am doing it someplace safe, someplace fun, surrounded by the love of friends and family.

However, a year ago I was still working my last week as a nurse, not ignorant of how fragile life is, and not unfamiliar with stormy life seas, but as FB keeps reminding me, ignorant of the iceberg in my path.

Maybe I’m fiddling on the Titanic, however it’s still truly a wonderful world.

Day 16: 31 in 31

PTSD

Hate is the terror that follows me

Vituperative words the clothing of that

Second shadow that all the meds or therapy cannot sever

It crouches ever on my heels, small in the noon day sun of reality.

A shade more deadly but less sympathetic than my fleshy cancer,

Waiting for the evening creep of media reports,

Well-intentioned Awareness campaigns,

Inadvertent closure of an exit with any other in the room,

The uncontrolled and frequent contact in a crowd;

The memories’ setting sun swell it’s size and power

Till panic swallows my hard won peace of mind.

Day 9:31 in 31

The words and memories speed

retreat

like landscape past the coachcar window.

My monkey mind scrambles and chases

catching only wind and wave

Until I breathe in

Out

Find peace in this new

Where I do not know.

Day 8: 31in31 Poetry Challenge

Middle class affluence always looks the same

The bullseye symbol of suburban prosperity

Restaurants with barber pole motif

A giant yellow M

From sea to shining sea the chains stretch

linking those who have it all to what they will need next.

Schrodinger's cat lives, magic is science, and compassion and integrity are the only necessary ingredients for happiness.